Expert consensus on the diagnosis and treatment of idiopathic intracranial hypertension (papilledema) in China (2025)

Authors: Expert Workgroup of Expert consensus on the diagnosis and treatment of idiopathic intracranial hypertension (papilledema) in China (2025), Neuro-ophthalmology Group of Ophthalmology Branch of Chinese Medical Association, Neuro-Ophthalmology Society, Chinese Research Hospital Association
   
DOI: 10.3760/cma.j.cn115989-20241222-00358

Citation

Expert Workgroup of Expert consensus on the diagnosis and treatment of idiopathic intracranial hypertension (papilledema) in China (2025), Neuro-ophthalmology Group of Ophthalmology Branch of Chinese Medical Association, Neuro-Ophthalmology Society, Chinese Research Hospital Association. Expert consensus on the diagnosis and treatment of idiopathic intracranial hypertension (papilledema) in China (2025)[J]. Chin J Exp Ophthalmol, 2025, 43(05): 392-402. DOI: 10.3760/cma.j.cn115989-20241222-00358.

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ABSTRACT

Idiopathic intracranial hypertension (IIH) clinically manifests as increased intracranial pressure, headache, papilledema, and visual field defects or vision loss, while cerebrospinal fluid composition and magnetic resonance imaging brain parenchyma are normal.After the onset of IIH, the morphological structure and function of the patient’s optic nerve may be affected to varying degrees, and in severe cases, irreversible vision loss may occur.Since IIH is relatively rare in China, most ophthalmologists do not have a sufficient understanding of the course of this disease, resulting in a high rate of misdiagnosis or missed diagnosis, delaying effective treatment of patients.IIH mainly occurs in overweight/obese women of childbearing age.Due to the high incidence of obesity, IIH is relatively common in Western countries.In recent years, the number of obese people in China has also gradually increased, and the incidence of IIH has an increasing trend.Since the ocular symptoms and signs of patients with this disease are relatively obvious, some patients first visit the ophthalmology department, so the diagnosis and treatment level of ophthalmologists and neurologists for this disease must be urgently improved to minimize the missed diagnosis or misdiagnosis rate.In view of the lack of standardized procedures for the diagnosis and treatment of IIH in China, the Neuro-ophthalmology Group of Ophthalmology Branch of Chinese Medical Association and the Neuro-Ophthalmology Society, Chinese Research Hospital Association organized relevant experts to extensively review and summarize high-level evidence-based literature at home and abroad in related fields, and combined with the clinical practice experience of each expert to formulate the Expert consensus on the diagnosis and treatment of idiopathic intracranial hypertension (papilledema) in China (2025) to provide expert recommendations for better and more standardized diagnosis and treatment of IIH patients.

Idiopathic intracranial hypertension;Papilledema;Visual impairment;Headache;Pseudotumor cerebri;Obesity;Consensus

Authors Info & Affiliations 

Expert Workgroup of Expert consensus on the diagnosis and treatment of idiopathic intracranial hypertension (papilledema) in China (2025)
Neuro-ophthalmology Group of Ophthalmology Branch of Chinese Medical Association
Neuro-Ophthalmology Society, Chinese Research Hospital Association
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